You may remember the story of Garrett Shakespeare, the young man from North Vancouver who shared his story on CKNW's morning news with Phillip Till.

Shakespeare was told he would die if he didn't get a very expensive drug for his very rare blood condition, paroxysmal nocturnal haemoglobinuria or PNH.

During last week's meeting of Canada's Premiers in Vancouver, Delegates reached a landmark pan-Canadian agreeemet to fund the drug Soliris, which can cost up to $500,000 annually.

Shakespeare call Soliris his 'miracle cure'.

"I don't think I would have lived very much longer if I didn't get it, from what I heard from my doctors I didn't have a lot of time left...It's (Soliris) an intravenous I-V injection for about 45 minutes, every 2 weeks, and apparently it starts working pretty much right away, and then almost all of the symptoms are reversed within six months."

There are fewer than 90 Canadians living with PNH.

The annoucement came on Friday, which also happened to be Garrett's 23rd birthday.